Overview
The All of Us Research Program (previously known as the Precision Medicine Initiative Cohort Program) is a research program created in 2015 during the tenure of Barack Obama with $130 million in funding that aims to make advances in tailoring medical care to the individual. The mission of All of Us is to accelerate health and medical breakthroughs, enabling individualized prevention, treatment and care.
The project aims to collect genetic and health data from one million volunteers. The initiative was announced during the 2015 State of the Union Address, and is run by the National Institutes of Health (NIH). The program is bilingual, with information and materials available in Spanish and English.
Core values
A set of All of Us core values is guiding the development and implementation of the All of Us Research Program:
Participation is open to all.
Participants reflect the rich diversity of the U.S.
Participants are partners.
Trust will be earned through transparency.
Participants have access to their information.
Data will be accessed broadly for research purposes.
Security and privacy will be of the highest importance.
The program will be a catalyst for positive change in research.
What data are collected
Participants of the All of Us Research Program are required to complete a survey that gathers information about their lifestyle and environment. Participants in All of Us can choose to give researchers access to their electronic health records (EHR), which includes information about their individual health problems and treatment they have received. They may also be asked to provide blood and urine samples and your physical measurements.
From Wikipedia (CC BY-SA 4.0).